Since our inception, the aim and dream was to establish a home for adults with PWS. As a registered Non Profit Organisation(NPO), we are completely reliant on public funding and donations and an Article 18A tax certificate can be issued to those who choose to do so.. The journey was a tough one, but very rewarding at the same time and we have officially opened our doors on 2 February 2019!
A home for adults living with Prader-Willi
The main aim of Henri Warnich Foundation is to establish a home for those who live with Prader-Willi syndrome. After years of blood, sweat and tears this dream has become a reality and we officially opened our doors on 2 February 2019!
WHO WE ARE
What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a complex genetic condition that affects every aspect of a person’s life. It is most commonly known for the fact that people with PWS become obsessed with food anytime from about 2yrs old onwards. Unless they are strictly managed, they will overeat (known as hyperphagia), become obese and will have a variety of associated medical problems.
Read more: http://www.praderwilli.org.za/about/what
Prader-Willi syndrome is a genetic condition whose cause is quite complex. It occurs when there is lack of expression of one or more genes in a specific region on the chromosome 15 that was inherited from the father, the precise location of the abnormality being designated as 15(q11-q13). There are 3 common ways that this lack of expression can occur: